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Mixed Up Mother’s Day

This is a weird Mother’s Day for me.  I’m getting ready to fly out to California to help my mom make funeral arrangements other end of life decisions and nursing home/ insurance company billing issues for my dad.  Dad is probably in his last couple of months of life.  His doctor is amazed that he has lived as long as he has.  However, dad was always a scrappy fighter and remains so despite his end stage Alzheimer’s disease and probable cancer.

Mom has had a tough go of it.  Dealing with my dad’s deteriorating condition the past five years and not having retired life turn out the way that they planned has worn her down.  She is not doing well neither physically or emotionally.  Sometimes her emotional state leads to difficult situations for my brother and me.   As with most independent minded older children my  relationship with her has been at times mercurial.  Mom wanted me to remain in our home town and be a teacher.  That didn’t happen.  As readers of this blog know, I am that Navy Brat who never grew  up and lives for the adventure of life and discovery.  When my dad retired from the Navy in 1974 I thought life was over.  The adventure of seeing new places and discovery seemed to stop.  When I finished my first two years of college I moved away, only to return for visits as I have ambled about the world.  I know that she has had a hard time with this but some things can’t be helped. It is interesting because she and dad did the same thing.  They joined the Navy and never went back to their hometown except to visit.

Mom has always been a bit special.  When my dad was in the Navy she was a rock.  Once a neighbor threatened me and mom went down and blasted him.  It was kind of cool to see my barely 5 foot tall mom take on a man who was 6 foot 6.  She would have had no hesitation to clobber him had the man laid a finger on me.  She endured a lot in life.  Her dad was abusive and controlling.  She endured frequent separations from my dad when he was in the Navy.  She worked hard in the house and outside of it.  We didn’t lack for anything.   She experienced the loss of many friends when the aircraft carrying the Marshall University football team crashed in 1970.

At the same time she is her father’s daughter.  She has always  known how to get my dad, my brother and me into rages.  She knows our buttons and can push them at will.  Thankfully my brother and I have become much more adept in recognizing what is going on and only occasionally have flare ups, a credit to our self discipline as well as a touch of help from the Deity herself.   Our family in better times was much like the Costanza’s in Seinfeld.My brother and I understand George completely.  At times we resemble Ray Romano’s family in Everybody Loves Raymond. Back in 1998 when I was the installation chaplain at Fort Indiantown Gap Pennsylvania Judy and I were watching Seinfeld. George’s parents were screaming and Judy looked at me with wides eyes and a shudder ran through my body.  She said “My God that’s your parents.”  I responded “I know but we can never tell them.”  The next night we got a phone call from mom.  She asked me: “Did you hear what Jeff told us last night?”  I said “no.”  She then said “Jeff said that we were just like Frank and Estelle Costanza on Seinfeld.”  I was stunned and started laughing out loud.  I then said “Mom, we were watching Seinfeld last night and thought the same thing.  But we weren’t going to say anything….but since Jeff has brought it up, you are just like them.”  She cried “Nooo!”  We later have had a lot of laughs over this but sometimes I think that  Jeff and I each in our own way are George Costanza or Ray Romano and our wives like Raymond’s wife played by Patricia Heaton.

My brother and I were born almost six years apart.  As such for most of our younger lives really didn’t think that we had that much in common.  Over the course of the past 10-15 years we have found that we are much more alike than not. Our views on politics, religion, how we react to different stressors, how we do life are surprisingly similar. He works hard as a school principal and is very involved in his family’s life.   His oldest son evidently has at least some of my personality traits and at times I am reminded by Jeff  that he never thought that he would be “raising his brother.”

Anyway the relationship that we have with mom is interesting, especially now.  She’s not doing well and I wish that we could get her back to where she was five to ten years ago.  However, that won’t  happen.  Certain medical and physical conditions never get better.  Mom is grieving dad, the man that she spent 50 years with is gone, even though his body is still alive.

I am going to surprise her tomorrow.  My Mother’s Day Card is intentionally late.  I have it to take with me.  Instead of the usual flowers sent through an online service, I will pick them up on the way to the house.  I’m telling her that I expect the man bringing her gift and card to get to the house about 12:30 or 1:00 her time.  However that man will be me.

I do appreciate your prayers this week.  I imagine it will be difficult.  Pray for my mom and dad.

Peace and blessings, Steve+

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Filed under alzheimer's disease, healthcare, Loose thoughts and musings

Long Goodbyes- Letting go when a parent has Alzheimer’s disease

jeff-dad-and-me-at-ca-capitol1Better Times: Jeff, Dad and Me in front of California State Capitol around 1972-1973

We all hit times of transition in our lives.  Sometimes these involves moves, job changes and relationship changes.  However the hardest seem to be the passage of generations, especially when we see our parents passing away or in their final months. Alzheimer’s disease makes that process different, it’s not like a heart attack or stroke although strokes can have a similar effect, cancer or renal failure.  Alzheimer’s takes the person that you knew away long before they die.  It is the longest of goodbyes.

My dad has been diagnosed with Alzheimer’s for some time now.  He has been going down bit by bit for the past several years.  It started slow, in fact we didn’t initially notice it.  He started not remembering things and having minor fender bender accidents which we found out about later.  As he continued to go down his mental status, nervous behavior and lack of awareness increased.  As this happened my mother tried to take care of him herself, she tried hard, but was unable to cope with him.  Eventually she began to wear down.  When he fell down and broke his arm in several places last year it was the beginning of the end for him, an end that is likely fast approaching. Since he broke his arm his mental status and physical condition have deteriorated significantly.  Additionally his disease process has affected my mom, who has not taken care of herself the way that she should.

I saw him in the spring of 2007 just before I went to Iraq, and last year after my return from Iraq I made three visits to the California from my home in Virginia.  I anticipate a trip out in the relatively near future.  Neither my dad or my mom are the parents now that I grew up with, the disease has taken a toll on both of them. Of course we all think about the patient, but the closest caregiver is often worn down to nothing by the process.  This has been a process of a long goodbye for all of us.

Diseases such as Alzheimer’s are hard to deal with.  They are slow moving and because they are rob the person of who they are, difficult to watch.  Those closest to them seldom realize what is happening until things start really getting weird.  Such was the case with my mom.  my dad was having auto accidents and other problems before his diagnosis. Before this dad was active, involved with community groups and an avid golfer.  He loved all kinds of sports and to travel.

His deterioration has been most remarkable to me.  This is perhaps due to my distance away from where my folks live.  I don’t see him everyday.  Thus when I go back my benchmark for how I see him is different than that of my mom and brother.  I can see the major changes in every visit because of the distance.  Likewise I can see the deterioration in my mother’s condition with each visit.  I can see the toll that my dad’s disease has taken on her. She is not the same as she was even a few years ago.

Even though I am not in the same town, I am reminded of my parents on an almost daily basis.  In my work in the ICU of a major Naval Medical center I get to spend time with a lot of people who are a lot like my folks.  My parents are retired Navy, my dad retired as a Chief Petty Officer back in 1974.  I am a quintessential “Navy Brat.”  I grew up in it, I lived and guess that I still live for the adventure of military life.  I find that there are a couple of major sub-groups of military brats.  Those who loved it and somehow continue that type of lifestyle, and those who don’t and as soon as dad retires never look back.  They never move again if they can help it.  My brother is like that, he has remained and been very successful as a teacher, and now school principal in the town that we retired in.  He has a wonderful family and it turns out that we are a lot more alike than we are different.  I see a lot of this where I work.  It seems that a good number of the patients and families that I get to know in our ICU are my parents generation.  Their kids are often “Navy Brats” like me. We have a shared experience of life that you do not find in many other places.  It is like we are family.

While I spend time with these folks, many going through end of life situations, I often see my parents.  Every old retired Chief, or retired Chief’s wife reminds me of my folks.  They remind me of the good times and the bad.  They remind me that I am awaiting my time to be be at my parents bedsides, not as the Priest, but as the son. With every one of these visits  I am back home.  During clinical pastoral education training you are taught to recognize what is your stuff and what belongs to the patient and the family.  I’m pretty good at doing this, but even recognizing this fact, the feelings can run pretty strong.  Like the Romulan that I am I am not a big fan of emotion.

This is a long goodbye.  Alzheimer’s ensures that you do not wake up and find that your parents died suddenly and unexpectedly.  They die a little more every day. With each visit I have returned to my home and duty station wondering when I will hear that either mom or dad has passed away.

This week was hard.  I got a call from the nursing supervisor of the place where my dad is being cared for.  His condition has gotten worse, his weight is dropping rapidly, 10 pounds in the past month despite increases in diet and nutrition.  The call came at a unusual time, when I saw the number I thought that it was the call that said he had passed away.  The lady who called is an old high school classmate who not only is concerned about my dad but also my mom and she let me know that dad has lost 4 pounds in the last week. His doctor is surprised that he is still alive.  He is down to 116 pounds, and even when I saw him at 130 last year he looked really bad.

We made the  decision yesterday to make my dad a hospice patient.  He will remain where he is, but will now will receive hospice care.  The decision was another watershed.  My brother and I both have known and made our peace with the fact that my dad is in his final months or maybe even days.  The end is coming, and is sooner than it once was. It has been harder for my mom, I don’t know if she will recover, she had somehow hoped beyond hope that he would somehow regain himself.

The goodbyes to my dad have been said, but they are not finished.  When that will be is still uncertain.  Until that day things will remain in this no-man’s land between life and death.  I know that there are millions of others going through similar situations and to them I say “you are not alone.”

Peace, Steve+

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Filed under alzheimer's disease, Loose thoughts and musings, Military

Navy “Brats”

I grew up in a Navy family. I was born in a Navy hospital, and my brother was baptized in a Navy Chapel. I went to 6 elementary schools in three states in 6 years. As a result I learned to adapt to change, make friends and at an early age, move on when we moved to our next duty station.

We grew up in the anti-military maelstrom of the 1960s and 1970s. A Sunday School teacher told me that my dad was a baby killer when he was in Vietnam,. It was a Roman Catholic Navy Chaplain that helped me keep some faith in God, and it is to him I owe my vocation as a priest and chaplain.

When Dad retired from the Navy I was not happy because I wasn’t ready for the adventure to end. I liked the new places, people and travel. Dad was really good about making sure that we got to experience something unique everywhere we went, from Corregidor in the Philippines, the outdoor life of the Puget Sound, Major League Baseball in California, and Hockey. Disneyland and Knott’s Berry Farm were regular attractions in Southern California. From Dad, presents from the Far East including a 10 speed bike and a pachinko machine for me.

They were good times. We took trips across country by train to visit family in the days before Amtrak, riding every major route from the West Coast to Chicago, the Great Northern-Burlington Northern “Empire Builder,” the Western Pacific “Zephyr” Southern Pacific “Daylight”, Santa Fe “Super Chief” and “El Capitan.” As we were coming home from the Philippines on a Military Transport ship, the USS John C Breckenridge, we were allowed to explore the ship and for the first time I got a sense of the sea.  Something about that voyage caused me to love the sea and ships. Growing up we were allowed to take risks, we had the chance to succeed, but also to learn about life by occasionally failing.  When dad was deployed mom took on the burden of caring for us.  That was difficult for her, but she did well.  The Navy wife and mother actually has a harder job than the deployed sailor.

There is something about being a Navy “brat.” I have been blessed to see our best friends’ boys, Jack and Alex grow up. We’ve known them since they were 4 and 8, respectively and now they are 17 and 13, or something like that. They have great senses of humor and are great to be around. Like me, the life of being a Navy brat is all they know. My first memories of being a Navy brat begin with living in the Philippines. Their dad’s first Navy assignment was in Guantanamo Bay, Cuba. Jack may remember life before the Navy, but Alex is too young to remember anything but the Navy.

My life has remained closely tied to the military. After dad retired I did three years of Navy Junior ROTC in High School getting to travel up and down the West Coast and to Hawaii aboard 6 different ships for about 70 days at sea. My parents hoped beyond hope that I would settle down, but I was not deterred. I joined the Army National Guard just prior to entering the UCLA Army ROTC program. I didn’t do the Navy because my fiancé, now my wife Judy, said that she would not marry me if I joined the Navy. Her oldest sister’s husband was on a ship during Viet Nam and was never home. Judy witnessed the pain and hardship her sister went through, and then a couple of decades later, her other sister married navy men while she herself was in the Navy.

So I spent 17 and a half years in the active Army, National Guard and Reserves before finally getting the chance to come in the Navy in February 1999, as I turned in my gold Army Major’s oak leaf for the twin bars of a Navy Lieutenant. Judy wasn’t happy at first, because she had been looking forward to me retiring from the Army Reserve so we would no longer have so many separations. Judy was also less than thrilled because remembering her words about the Navy when we were dating, I didn’t consult her. I just signed on the dotted line. It took her a while to come to terms with this decision. I’ve also learned not to make major decisions without consulting her Oh well…It has all been good.

I now serve at Portsmouth Naval Medical Center. Often in the ICU I have patients who are about my parents’ age facing major health crisis’s and sometimes end of life issues. Their kids are often my contemporaries. We have shared a similar life and cultural experience as Navy “Brats” of our era. There is a kinship that I have with these families that transcends the here and now, something that binds Navy families together. I have no idea when this grand adventure will end, but one thing is for sure, and for this I will always be grateful, to be a Navy Brat.

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